Matty's Blog

Matty's Blog

A story about Matthew William Jones

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Bubs

Bubs is starting to look exactly like that! He’s nearly tripled in weight since birth, now tipping in at 1.47kg. All that milk is starting to put a bit of meat on the bones too, and he’s definately a much happier little fella. As you can see from the photo, he’s very nearly starting to [...]

Suck!

Well, Young Matthew is pretty happy today. His CPAP base pressure has been put down to 5cm H20, which is pretty good (the minimum setting is 3). Best news though is that he’s still passing stuff through his ileostomy. His little intestinal tract looks to me like it’s really starting to get moving.
He’s probably pretty [...]

Do the Hokey Pokey

Matthew’s found another way to keep himself occupied today. Leg exercises. Whilst we were checking on him this morning, we caught him midway through doing the hokey pokey…. (The bit that goes.. “You put your right leg in, you put your right leg out, you put your right leg in.. and you shake it all [...]

Hi Matty

Matthew’s much improved this morning. They’ve been able to pull his oxygen down to 48%, and intend on continuing to lower it throughout today. It’s unlikely he’ll get off the HFO today, but maybe tomorrow. Matty would like to say a big hi to everyone following his progress:

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