Matty's Blog

Matty's Blog

A story about Matthew William Jones

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Big Day In

It’s been a big day for Matty. Firstly… He was having a major aggro when he was on CPAP this morning… so the doctors took him off it! That’s right, completely off CPAP. (Well it’s a trial, but 14 hours in he’s not having any issues.
Secondly, Mum was able to coordinate a consultation with the [...]

Bubs

Bubs is starting to look exactly like that! He’s nearly tripled in weight since birth, now tipping in at 1.47kg. All that milk is starting to put a bit of meat on the bones too, and he’s definately a much happier little fella. As you can see from the photo, he’s very nearly starting to [...]

Blockages in the internet tubes

Sorry not to have let you all know, but i’m having an internet upgrade at the moment so that i can host my own mail server and some other bits and pieces, and hence today.. the server was down. What else was down, you ask? well Matty’s oxygen requirements! He’s been down around 23% for [...]

Bars

This is the only time you’re allowed behind bars Matty!
Actually, it must really feel like he’s locked in a prison sometimes. Being away from your family, not able to see the outside world.
Nevertheless, Matthew is continuing to make great progress these days. Dad got a cuddle tonight, as did Mum. Everyone that sees Matthew these [...]

Nipples and Things

Major milestone! There’s been a few lately, but tonight’s was that Matty got a familiarisation session with the nipple. No major feeding fresh from the source yet, but hey, you gotta crawl before you can walk and run.
Matty continues to do really well. His feeds are up to a whopping 168mls per day, which puts [...]

The Melbourne Cup Gala

What a day! Unfortunately, Dad had to work.. but Mum and Matty were quite busy getting dressed up for the Melbourne Cup. It turned out to be quite an affair in the NICU, with babes and their parents dressing up, prizes and the raffle. Well.. it turns out Matty won the prize for best dressed [...]

No Soup for You!

Or in Matty’s case, TPN (total parenteral nutrition). Yes.. you heard right, today is his last day of TPN. As he’s having so much milk these days (now over 100ml/day), he no longer has the need for TPN. Matty gets around 150mls of fluid a day, of which about 25 is drugs, 108 milk, and [...]

Bub in Cot!

Amazing night… amazing day! Today marks a major milestone. Last night Matty was getting a bit hot in his incubator, so today.. they’ve moved him to a cot! He’s doing great on CPAP, and even spent a bit of time last night in air. Feeds have been increased again, and he’s now taking about 96mls [...]

Happy Halloween

It’s been a great day. Matty’s finally made it to CPAP again, and doing really well on it. He’s definately a lot more stable with his oxygen saturation on CPAP than on the ventilator. He’s also still going really well with the feeds.
For halloween, Mum and Dad thought they might dress up Matty’s little house [...]

Christmas Eve

It’s kinda like the night before christmas. There’s such an anticipation and hope.. expectations and desires. We have to be really careful not to create unrealistic expectations because that could lead to breakdowns, but at the same time we really need to be positive. Matthew’s very settled this evening and his oxygen saturation is the [...]

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