Matty's Blog

Matty's Blog

A story about Matthew William Jones

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Bye Bye Bottles

Matthew has finally done it! No more supplemental oxygen! The results from the sleep study came in and they show that Matthew is able to stay off the oxygen overnight. It did, however, show that he had an episode of his oxygen saturations dropping below 90% which isn’t really a problem unlessĀ  he stays there for too long. He stayed under 90% for over a minute, which does concern them, but they know he is fine because he bounced right back to the high 90’s after that minute. We are under instructions to allow Matthew to stay off the oxygen, but at any signs of him staying under 88% (our alarm limit on the pulse-oximeter monitor), to put him back on the oxygen. Last night, he did not alarm once (at least a legitimate alarm – Matthew likes to wriggle until the monitor loses trace and its shows that he has no heart beat – we don’t believe it for one second).

In other news, Matthew is now a big boy of 8kg! He is taking his solid foods very well, now being able to wolf down 2 tablespoons of food at every daytime meal. Like any child he has his favorite food – Heinz Vanilla Custard. We can get him to fit in a few extra spoons after a meal of vegetables or chicken as long as it is that vanilla custard. Sweet tooth, just like his mum!

2 Responses to “Bye Bye Bottles”

  1. 1
    Elisabeth:

    Such good news!!! Go Matty!

  2. 2
    ives:

    Wow, that is veritably excellent! It’s great to see Matty progressing so well.

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