No, not the song composed in 1976 by Jean Michel Jarre. I’m talking about the stuff that you and I need to breathe. More specifically, i’m talking about Matthew’s supplemental oxygen. Actually, now it would seem that he’s not just having a little bit additional. Now that he’s under the careful care of the respiratory [...]
Matty’s had a pretty long and tiring day. The move down to 5D was pretty straightforward, but it was quite a tiring afternoon, as the environment is somewhat more busy, and all the disturbance has kept Matty from his beauty sleep. After his 1800 feed, I managed to get him to sleep long enough to [...]
OK.. so Matty’s going to 5D. I’m over the whole worry about 5D really, because at the end of the day, it’s just another step closer to the exit doors. Furthermore… he’s not moving down there on Monday anymore.. he’s moving down there tomorrow (or today it would seem, because it’s pretty late now). Because [...]
I feel pretty gutted, and i don’t really know why. Matty’s doing fine. In fact, he’s doing pretty well. But you see, the thing is.. They’ve decided to transfer him to Ward 5D. 5D is the infants ward. Where older babies and infants that are admitted go… Well.. i suppose Matty is now an older [...]
Nothing much happening today. Only real changes were some slight modifications to Matty’s drugs… adjustments to his sodium and phosphate.
Matty got a good hour with the physiotherapist this morning, doing all sorts of stretches and poses, and in general, she’s pretty happy with the progress Matty has made to date. In fact, he’s particularly good [...]
And it’s been a big one for Matty. Actually.. it’s been a pretty big day for all of us. This morning, we gave Matty his 0900 feed (during which he sucked 30mls), followed by a bath
followed by a ostomy bag change, followed by Mum changing Matty’s NGT (naso-gastric tube) and then it was out for [...]
This morning, we took Matty out for another stroll. In fact, it was a bit more of a wander than yesterday, out around the perimeter of the hospital and over all sorts of paths from the bumpy brick paved ones to the smooth asphalt ones. Regardless of the ground texture, Matty was very happy to [...]
So although Matty failed his safety in air test yesterday… he did do well enough that he was allowed out for a walk today! So this morning, we took the pram, loaded Matty into it, along with an oxygen cylinder and a pulse oximeter, and went down to the childrens playground to get some fresh [...]
Well, it’s been a busy day. This morning, we found out that they decided that today would be a good day to do Matty’s safety in air test. He had a pretty unsettled morning, including having to have his ostomy bag replaced, and so it wasn’t so surprising that he didn’t pass his test… He [...]
Mum spent her day cleaning around the house, preparing it so that when Matthew comes home it is ready for his arrival. The washing has been piling up over the last few months and Mum and Dad have been doing the ‘bare minimum’ so that they don’t need to be home as much. Mum [...]
