Matty's Blog

Matty's Blog

A story about Matthew William Jones

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Go Matty! It’s your birthday!

Guess who’s turned 2? MATTY!!! My little sweetie has had such an amazing year. I still count my blessings that he was not re-admitted to hospital. So many doctors told us that the first two years would mean a lot of hospital visits in the middle of the night. We had none of those. Mostly [...]

Almost there….

Well, here we are, a week out from Master Jones reaching the milestone of turning two. And oh, what a year it has been. When I look back at how far he has come in just a year, it puts into perspective just how much of a miracle he is. Here is the link to [...]

The arrival…

….of poop! Matty finally did it – he did a poo in his nappy! At about 8pm last night, Dad and I did a nappy change and we got to find a nice little present inside. He must have been saving it for a while because it almost escaped the nappy and would have gotten [...]

Barrier Creams and Morphine

Yes, it sounds like an unusual mix, but it’s pretty much par for the course when you’ve had an ileostomy reversal and have never passed fecal matter from where the rest of us do.
What you might have also gathered from that last statement is that the surgery went according to the textbook. The bowel surgery [...]

Waiting…

Sitting here in the waiting room gets me thinking. Some say the waiting is the hardest part. I’m not sure I agree but I am starting to really notice a pattern with how it goes.
Leading up to the surgery you spend lots of time not thinking about it. And then before you know it, it’s [...]

Reversal surgery, take 2

In just a few hours master Matthew will be back at PMH for his stoma reversal surgery. Once again, we don’t expect any hiccups and expect it all to go pretty smoothly (that is until he wakes up and goes what’s going on in my nappy?!).
I’ll post an update a little later with word on [...]

Jiggity Jig

As you already know, Matthew coped really well with the surgery and the pain post-op, so we were transferred from the ICU down to the surgical ward. The night we had on the surgical ward was no different. They hooked him back up to the pulse oximeter just to be on the safe side, but [...]

Breathing Easier

Yep, we all are as of this afternoon. Young master Matthew has once again breezed through surgery with flying colours. So much so, they transferred him out of the ICU and into the surgical ward early this evening. He was originally planned to stay the night up there, but he seems to have recovered so [...]

Surgery time.

Tomorrow we go in for surgery to remove the cyst that they found on Matthew’s voice box. They found the cyst when he went in for reversal surgery for his stoma and they couldn’t ventilate him. While they are in there they are going to have a good look around and see if they need [...]

Pew, pew, pew.

That’s how fast Matthew isĀ achievingĀ some of his toughest milestones at the moment – it’s like a gun firing off. For starters Matty has just started to crawl. He is still learning so he currently looks like a soldier as he can only do a commando style crawl. With time and more physiotherapy we should be [...]

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